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A 16-year-old Oroville boy
has been selected as an ambassador to Europe for the
People to People program, but there's one glitch, he
needs a sign language interpreter.
Justin Klein-Edgerton was nominated as a student
ambassador for a program founded by President Dwight
Eisenhower in 1954 to promote world peace by having
people communicate directly with each other.
Justin's mother has to pay his expenses for the trip,
which totals about $6,000, but they also need about
$5,000 to pay for an interpreter.
Justin's nomination and selection as an ambassador is
just one of many things he has accomplished as a
teenager that are miraculous, as at birth, doctors
predicted he would never develop beyond a vegetative
state. |

Photo: DAVID C. NEILSEN
II/MERCURY-REGISTER Justin Klein-Edgerton |
"The neurologist told his parents he would be blind, deaf and
profoundly retarded and never walk, talk, smile or even know
them," said Elaine Edgerton, his adoption mother.
Edgerton adopted Justin when he was six weeks old. Because of a
cytomegalovirus infection before birth that effected his brain,
a neurologist had advised Justin's birth mother who was
interning to become a medical doctor that she wouldn't be able
to care for him.
However, Elaine, a retired special education teacher, didn't
give up on
Justin, hiring a physical therapist to help. Elaine kept up a
rigorous exercise schedule that included a full range of
exercises every couple of hours.
Today, Justin is a sophomore at Durham High School, where he
attends regular academic classes and is on grade level, although
Elaine said she hasn't seen his report card for this semester.
"I'm getting 'A's and 'B's thank-you very much," Justin said.
Justin's favorite subjects are world history and geometry, but
he is also on the swim team and runs track, activities he
couldn't perform until this year.
In November 2005, he underwent surgery on his leg so he could
fully extend it. Before, his leg was retracted and he had to
walk on his toes. Since the surgery, Justin can run track and
ride a bicycle.
But, it has been a long journey. Elaine remembers how hard he
worked to learn to walk.
"He has one of the most determined personalities that I have
ever known," Elaine said.
At age three, Justin was getting around in a walker, but he
wanted to walk like other kids. He would pull himself up with
the walker and stand against a wall. Then, he would take off and
walk as far as he could before he collapsed. Then, Justin would
crawl back to the wall, pull himself up again and walk as far as
he could again.
"He would keep it up until I had to pick him up and rock him to
calm him down," Elaine said.
Justin also had intensive speech therapy, with Elaine taking him
to Chico State for extra speech therapy. His speech is good in
one-to-one communication. At first, some of Justin's words are
difficult to understand, but after talking to him for an hour,
you start to understand him.
He has a hearing aid, and he also reads lips to process what
other people are saying.
Justin's determination helped with his recovery after the
surgery to extend his leg. The therapists were surprised by how
hard Justin worked during physical therapy.
"He always pushes himself to the limit," Elaine said.
Elaine has always encouraged Justin to excel. For many years,
she was told that he was in the 90th percentile in his classes.
Then, she learned they were comparing him to deaf students and
students with disabilities, and he was actually two to three
grade levels behind in some academic areas.
"But, Jason wanted to go to college like his parents," Elaine
said, "and he couldn't do that if he read at a fourth grade
level."
Elaine worked with the schools to bring Jason up to grade level,
and he was integrated into regular classes at Durham High School
as a freshman. Now a sophomore, Jason is taking college prep
classes.
"He has learned so much being in the school and integrated with
the other students," Elaine said.
Justin stays in contact with his birth parents and family,
visiting on school breaks, as his is an open adoption. Elaine
attributes his development in part to good genetics. His father
has a Ph.D. in psychology, and his mother is a medical doctor.
"I come from a smart family," Justin said.
Justin said he met the neurologist who diagnosed him at birth.
He was visiting his birth parents in San Diego, and the family
went to an amusement park.
The doctor recognized Justin's mother and came up to her and
said, "You're the woman who had the baby with CMV." He asked
about Justin, and she said he was at the park.
Justin said the doctor watched him riding on the rides in the
amusement park and running around, and just said, "Oh my god, oh
my god, oh my god."
Justin said the doctor attributed his development to all the
physical therapy, exercises and speech therapy that his adopted
mother gave him.
"Where would I be without her?" Justin asked. "I would be in a
wheel chair like this," he said, slumping over sideways and
closing his eyes and opening his mouth.
Justin keeps in contact with his friends by text messaging and
e-mail. He learned to ride a bicycle this Christmas. Before his
surgery, he couldn't ride, as his leg wouldn't extend far
enough.
"I like to swim and run and watch T.V," Justin said, when asked
what he does for fun. "Did I mention video and computer games?"
he asked smiling.
When asked what his philosophy is about life, he said he was the
wrong person to ask about that. After thinking a bit, he said he
thought being positive and being yourself was very important.
"When you feel depressed, think of something happy like a
memory, and be thankful for what you have like your family, your
friends or even a girlfriend if you have one," Justin said,
grinning.
After thinking about it, Justin had more to say.
"In life, there's always bad things that happen, so be prepared
for anything. Just face your fears and keep on going like the
Energizer bunny," he said smiling.
Since 1963, Student Ambassador Programs has taken thousands of
young Americans across international borders. Venturing abroad
or on our own continent, Student Ambassadors return home with a
greater sense of what it means to be a good neighbor and a
global citizen, according to the People to People Web site.
Justin hopes to participate in the program this summer, but they
also have to pay the expenses of a sign language interpreter,
and donations could help. Justin has an interpreter from school
willing to accompany him, Rebecca Jones.
Elaine recalled what the neurologist had told her when she
adopted Justin at six weeks. He said only two percent of people
who contact CMV have vision. However, it was obvious Justin
could see.
However, the doctor showed her an MRI of Justin's brain. It
showed holes in every sphere of the brain. The neurologist said
there's a hole in the middle of the speech and language center
so he can't talk. Also the doctor said Justin wouldn't be able
to walk and would be paraplegic.
"Then he pulled out a crystal ball and put it in my hand and
said, 'This is how much we really know about the brain,'" Elaine
said.
Elaine also adopted two other children with disabilities after
raising her family and after her husband passed away. Justin has
shown that you can't always predict how a disability will affect
a child's development.
"It's been an amazing journey with him," Elaine said.
Donations to pay for a sign language interpreter for Justin can
be sent or taken to Washington Mutual Bank, 2001 Oro Dam Blvd.
East, Oroville California, 95966. Donations should be addressed
to Justin Klein-Edgerton. |